Links & Documents
Here are some resources for you if you are looking for more information and education about personal health records (PHRs), health record banks (HRBs) and more.
We’ve gathered some interesting reports and resources regarding personal health records and related subjects for your information. Are there other resources we should add to our list? Let us know—email us at info@AccessMyHealth.org.
PHRs, EMRs & HRBs
Privacy & Security
National Research & White Papers
- Summary: Institute of Medicine’s To Err is Human: Building A Safer Health System [PDF]—Summary of a report, issued in September 1999, that lays out a comprehensive strategy by which government, health care providers, industry, and consumers can reduce preventable medical errors.
- Perspective on the Future of Personal Health Records 2007 [PDF]—A document prepared for the California HealthCare Foundation by Christopher J. Gearon and other contributing writers. Explores the pros and cons of personal health records by presenting the perspectives of six experts—a technologist, an informed patient, a physician, an employer, and a public health official.
- Connecting Americans To Their Health Care: A Common Framework for Networked Personal Health Information [PDF]—A document prepared by a public-private collaboration called Connecting For Health. Explores the use of information technology to meet the critical needs of consumers, patients and their families.
- Deloitte 2008 Survey of Health Care Consumers Executive Summary [PDF]—A document prepared by Deloitte Center for Health Solutions. Summarizes the findings of a study on health care consumerism. Topics include consumers’ behaviors, attitudes and unmet needs related to health, health care and health insurance.
- Greater Louisville E-Health Research Report 2007 [PDF]—Reports on a research study to understand the perspectives of the Greater Louisville area community regarding the development of a community health record banking service. The study was conducted by Noblis, Inc, working in partnership with LouHIE with support from University of Louisville School of Public Health and Information Sciences, Department of Health Management and Systems Sciences (UofL).
- Whose Data Is It Anyway? Expanding Consumer Control over Personal Health Information [PDF]—An Issue Brief from the California HealthCare Foundation. Explores important issues that must be addressed if consumers are to have meaningful legal rights to access, use, and control their electronic health information.